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Caregiving for a loved one with Alzheimer’s can bring significant emotional, physical, and financial strain. Now, researchers are exploring whether artificial intelligence could provide another form of support for caregivers while keeping important ethical guardrails in place.
In Connecticut, 80,000 people are living with Alzheimer’s disease and receive help from 197,000 caregivers, many of them close family members, according to the Alzheimer’s Association.
For Kristen Cusato of the Alzheimer’s Association, the challenges of caregiving are personal. Her mother was diagnosed with Alzheimer’s at 61, leaving Cusato to help care for her.
“My mother was diagnosed at the age of 61, and she died four years later, and it completely changed my life and changed the trajectory of my life,” Cusato explained. “It is physically, financially, emotionally draining. It is such a hard thing.”
Researchers are now examining whether AI chatbots could help ease some of that burden.
Quinnipiac University professor Shizhen “Jasper” Jia and researchers at universities in Florida and Taiwan are developing an ethical roadmap for designing AI chatbots to support people experiencing stress while caring for loved ones.
“The blueprint just highlights the human values, the importance of human values,” Jia said.
Those values include building chatbots that provide compassion and guidance while incorporating safeguards around the collection and retention of personal or sensitive information.
Jia said AI chatbots could help direct caregivers to resources but should not replace human support.
“Humans still in the loop, but we hope the chatbot can take more responsibilities and give more help,” Jia said.
Jia also said chatbots should not diagnose diseases or provide medical advice, leaving those responsibilities to doctors and other professionals.
Dr. Gabriel Cartagena, a Yale School of Medicine psychiatry professor, said AI could also help caregivers manage some everyday responsibilities.
“AI can really be helpful when it comes to organizing important daily information, reminders for activities for your loved ones, reminders for yourself,” Cartagena said.
Cusato said she sees the potential for AI to assist caregivers with daily tasks and supports putting ethical guardrails in place. But she said the Alzheimer’s Association’s 24/7 hotline offers something a chatbot cannot — a real person with shared experiences.
“You need to be around other people who get it, and I think that that’s really, really critical,” Cusato said.
Any caregiver in need of help can access the Alzheimer’s Association’s 24/7 hotline at 1-800-272-3900.
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